Independance

In the past few days I have had a few people call or stop and ask how things are going with Epilepsy?  As people might remember, Epilepsy Association of the Eastern Shore are the people that help support me within my community.  I am in a category called Community Supported Living Arrangement or CSLA.  Based on the questions I have been getting I can only assume that people expected me to get upset with Epilepsy and ask to be taken off their care.  Why?  My case manager and I understand each other.  This is my home. (at least for now)  It is my space and I make the rules in my life.  Don't get me wrong I did have to give up some freedom.  I eat early and go to bed early.  No major parties for me.  I have to make sure my schedule fits  the care provider's schedule.(That I am home when she is here. and all)  But the trade off makes sense to me.  If I need help I have to make sure to be here to receive it.  Her help helps me a lot.  I also trust her company.  I am proud of who I chose to work with me.  That is the biggest thing.  People need people around them they can trust.   Even if you don't have a disability.  So choose the people who are close to you wisely.  Especially if they have a say in your well being.  I knew this care provider would be OK when she was talking to the four legged children the way I do.  She also talks to the TV like I do.  Her religion is not shoved down my throat,  and she is funny.  My case manager is a good ol boy.  Very nice.  He asked to meet me before we set up anything and we got to know each other.  Get my biggest theme running through any class I teach and anything I do.  DON'T PUT ME IN A BOX. DON'T ASSUME YOU KNOW ME FROM A PIECE OF PAPER OR PICTURE! DON'T MAKE QUICK JUDGEMENTS.  Get to know me I'm a good person who happens to be struggling right now.  Like a lot of people.  Keep me in your thoughts and prayers.  You are in mine.  Take care