A blog about the experiences of a person with a disability trying to make her way in the world. May include some links and information involving disability issues.
I am quite confused about something. I have had a rescue button on my wrist for almost 7 years now. I have shown the picture before. It looks like this...
This button is there in case I have an emergency. I have used it on sometimes. It gives my family and I some peace of mind that someone can come quickly if I am sick or in trouble. I recently got permission from the state for the people who manage my care to pay for this device. Except they have not paid it yet. I have called my case manager and heard nothing from him. I know his mom was ill. I hope nothing has happened. By the same token what am I supposed to do here? Do I pay it myself? It is over 100 dollars and will take a big chunk of my money. I may have no choice. I don't need something else going to collections and I have been feeling as though things were getting better for me slowly but surely. This would really put a damper on things. I think the best thing for me to do here is to call DDA and find out if the lack of payment is due to this medicaid issue. I have been trying to get reinstated on the medicaid waiver for some time now. As of Friday, I have not been reinstated yet. That may mean that the plan that I make with Epilepsy every year is not valid. If that is the case, he may not have to pay this bill yet. Though I wish I had gotten some notice.
These are the complicated parts of this disability system I hate so much but have to deal with. The really scary part is that eventually I may lose my care provider. If my care is paid for by this waiver and I don't have the waiver it could really cause problems. Not to mention the fact that my care provider may be out of a job that she and I really need. It's time for me to sit on the phone and find out my rights and tell someone off if need be. If the changes in someones life are going to be this monumental, Notice of those changes should be required. I am so sick of this crap. Wish me luck. Take care
On most Sundays people are home watching sports on TV. I am watching TV and movies. Most of the movies and things that I watch I don't even watch on TV. I tend to watch them on computer. I have been watching a show called Who do you think you are? It traces celebrity ancestry. I know that the people are chosen ahead of the investigation on TV because their families are interesting. I still like to watch the show. I have tried to look into my own family a bit to see if anything interesting pops up. I have not gotten very far. The local Nabb research center in a local college in the area has lots of information on local people. Neither side of my family is from this area. (Thank God sometimes) I hear it's a good place to research local history.
My family is up set with me for what I wrote on my last blog. I am sorry if they feel misrepresented. It's not like they never help. They have done a lot. But I do still feel that it might be more for the money than for other reasons. This is my blog and these are my thoughts and feelings and I will not hide from them. I have been asked not to contact them and I will respect their wishes. My hope is that there is eventually some way to work this out. If there isn't I am prepared to deal with that. Families often have crazy fights for different reasons. My family is no different. A few members of my immediate family are on some kind of disability. Those that are able to work are not able to find employment. If we are working, we can only do so much. This is a big part of this stress. None of us like living on whatever government monies we get. We all deal with it as best we can. Fights are going to happen and that's it. Spending time away from everyone may be what's needed now. I am finishing up the night with Funny Girl a soda, and a cuddle with the four legged children. Not a bad day. Take care
I have spent most of my day today dealing with four legged children. My grand cat in kitty jail is still doing OK. He demands a lot of attention. Most of the attention is because he is lonely. I understand that. I am lonely too. That is one thing I really hate about this area. Anyone worth my time is already taken. I am not one of these women that goes from man to man looking for someone to take care of me and I won't settle for whoever is around so that I can have a man. To top this, my care provider's boyfriend died and she already has someone interested in her. I can't convince any guy I like to like me and I can't stand the men that like me. Looks like I am going to be the crazy cat lady after all.
I am also beginning to wonder if my family is just coming to help me as just a source for money. They said they wanted to come over and help with the cat and clean. They have not been here in about 5 or 6 days. I told them I did not have much money. They said whatever I could give was fine. I gave them 48 dollars. This was supposed to buy cat litter, gas money and a coffee and bagel. My family told me by the time they bought all the cat litter and the coffee and bagel and put gas in the car there wasn't enough money for them to get a coffee. I got told off. I got told that my family member was never coming back to help. What could I do? I told them I didn't have much money. I said they could come back and I would give them money. They could have called me and told me that they wanted a coffee and were running out of money. I would have told them buy one smaller bag of litter. This could have been worked out many different ways but it wasn't. Now they are mad and I am upset.People with disabilities often get taken advantage of. I am not sure this is happening here but I don't like the odds. Anyway that's all for now. Hope my friends help me through Valentine's day. If you are alone on this day e mail me. We can commiserate together.
